Friday, September 14, 2012
San jose
Sealed my grandparents together last night, woke up today and flew to their beloved San Jose. Their home has not changed in 30 years, the pond behind their house I used to run around is the exact same. Their little neighborhood they used to live in has been frozen in time, kept up beautifully and it brought back so many memories. Oh to be able to sneak back to 20 years and have one more happy day with them there. It was the most perfect place to be today, their first day together forever.
Grandma, I even fed your ducks.
And then I found this bench dedicated to a cute old couple and I say there. for a really long time
Wednesday, September 12, 2012
Why lady docs should maybe only be ladies. Or less creepy men.
Since when can you only be as well as your doctor's level of compassion?
I keep thinking this thought over and over in my head and know I need to realize that it isn't them that are going to cure me - only the Lord can do that with oh, the right time, for starters.
Ready for another crazy doc story? herewego.
Since they found all of that endometriosis in March they have put me on so much birth control that - (I was trying to think of a funny line to finish this sentence with but it's not coming - I'll spare you any attempt). Anyway - too much b.c. That stuff will make ya nuts. And big - real big. At least that is what it does to me, has always done to me, and every time I get off of it I swear never again. So we've changed types, dosages, etc, but seriously, that stuff just isn't good for me.
So I made an appt with an ob/gyn up here at the U, made sure all of my medical records were transferring, and waited a short 7 weeks for the first appointment available with the doctor I wanted's colleague who looked creepy from his picture on the internet.
I digress. I wait 2 hours in my little exam room, luckily I brought a book to read so I wouldn't have to stare at those blasted posters on the wall one more minute, and waited. and waited. He comes in, doesn't shake my hand, won't look me in the eyes and says, 'Who told you you have endo?" 'Um.. my old doctor in Dallas said I had stage 2-3.' 'I need proof,' he says. Great - old doctor's office didn't send the records. I try and explain more and he says, 'well, if you are telling the truth and you do have it, I'm going to give you a shot.' I asked what kind of shot. He casually replied the long name of it and said it is the best treatment for endo. I asked for a little more info. 'Oh, you know, it works because it enduces menopause.' huh? 'There will be hot flashes, mood swings and headaches for the first year but most women says that gets better with time.' I kindly inquire if I would be able to ever get out of menopause and maybe have some babies one day (body willing). 'Um, maybe - but you'll definitely need the help of a fertility doctor to do that, after this shot.' Um, yeah - let's not do that. 'I'm going to need to think about this,' is what came out of my mouth. He switched my bc to yet another one to see in the meantime.
"Oh, one more question," I said as he was walking out the door 45 seconds after he came in. "I have this bump sticking out of my lower left side, right by my hip bone and it's really starting to hurt, could you maybe look at it and tell me what it is?' Over his shoulder he said, 'sounds like a hernia. I'll refer you to a surgeon.' Wouldn't look at it. Wouldn't touch it. He just left. mmmkay.
The nurse came in after that with an order to do an ultrasound on my endo. News to me but okay - I've had that pleasure many a time by now.
So - a week later the ultrasound was done (those ultrasounds deserve their own relaxing morphine cocktail as part of the procedure, in my opinion). a week after that I had another lovely appt at which I had pleaded my old doc's office to forward the records to this guy one more time. I show up - his nurse says until they have no records there is nothing to be done so we'll have to cancel. I asked if we could at least talk about the ultrasound. He walks in, looks at me, and then just walks out. kay. He comes back and says, 'ready for your shot?' "I think I'm gonna pass, actually, there are just too many risks and side effects.' 'Well, you do need a fertility doctor, anyway - I don't treat endo.' Okay, um, not really trying to get pregnant. "If you ever want to get pregnant, you need to start with one now to maintain fertility." Oh just get me out of here.
"Oh, how was that ultrasound, by the way,' I asked. 'Normal. Completly normal' No surprise to me since all of mine have been normal which took so blasted long to diagnose the thing - with an exploratory little operation. I asked him if he could look at that knot on my lower side that really has been hurting. "It's a hernia,' he replies back, not even looking in that direction, not wanting to examine it. "What did the ultrasound say it was?' "Oh, they said it was a swollen lymph node but I'm telling you, it's a hernia."
I left. With my referral to my hernia surgeon and fertility doctor (you should see some of the questions I have to answer, or really can't answer on that guy's questionnaire).
We'll keep trying. Maybe a shaman, at this point?
ps - dragged myself to hernia doc this morning - oh this guy was too cute! Little old japanese guy who I just wanted to hug. He really was just precious. He looked at it, felt it and after 5 seconds said, 'this is not a hernia, not even close. just a swollen lymph node.' Followed by, 'your ob/gyn should really know the difference.' Yup. he should.
YAY FOR NO HERNIA!
Tuesday, September 11, 2012
Thursday, September 6, 2012
Another one
Tonight I watched Machine Gun Preacher - a movie about an ex-con who finds Jesus and builds an orphanage in the Sudan. It was heartbreaking to be reminded about what they are going through over there, right now - in this very day and age. I still can't get the faces of those beautiful children out of my head - hope I never do.
Why do those so much better than I suffer so much worse?
Motusi - one of my favorite kiddos in this whole wide world.
Botswana, 2007.
Wednesday, September 5, 2012
Blendtec
Have you seen these things?? I want one like its Christmas morning. I have long felt that nutrition, or my lack thereof, is playing a huge role in my illness. A few years back, I even went on this crazy homeopathic diet where I only ate meat and vegetables for 7 months. Didn't work.
Anyway, I bought a juicer a couple of years ago thinking this would solve my problems by juicing all of the stuff I knew I would never chew. The problem - juicing takes quite a bit of energy. Everyday I lay in bed and think about what I will juice that day. Then I waddle upstairs, look at the thing and think about all of the time and energy it is going to take to do such, my head starts spinning and then I get back in bed.
Blendtecs don't have any prep work needed and no clean up... You can even make ice cream or soup in those things in like 2 minutes. It even heats the soup up for you. I am like an infomercial but my cousins rave about theirs and how much better they eat since having them.
New life. New town. New relationship to food. New way of eating.
What camera thing can I sell to buy one of these babies?
Anyway, I bought a juicer a couple of years ago thinking this would solve my problems by juicing all of the stuff I knew I would never chew. The problem - juicing takes quite a bit of energy. Everyday I lay in bed and think about what I will juice that day. Then I waddle upstairs, look at the thing and think about all of the time and energy it is going to take to do such, my head starts spinning and then I get back in bed.
Blendtecs don't have any prep work needed and no clean up... You can even make ice cream or soup in those things in like 2 minutes. It even heats the soup up for you. I am like an infomercial but my cousins rave about theirs and how much better they eat since having them.
New life. New town. New relationship to food. New way of eating.
What camera thing can I sell to buy one of these babies?
Tv
I needed to FTP transfer a bunch of files tonight from my lab to my computer and since we can now get a few channels I figured I would turn the TV on. Wow. 4 hours flew by, I got nothing done, couldn't think straight, and finally turned off that blasted thing wondering how in Earth I had gone so long addicted to that thing. Others handle it in moderation just fine- me, it paralyzes. All summer without one was great, I think I'll take a fall without one, too.
Monday, September 3, 2012
McCall
I've always said McCall is medicine. It truly is. I've been coming to this blessed place since I was a little girl and despite having been fortunate to travel the World, it still knocks my socks off every time I come. It is just that beautiful.
To many, Hawaii is their paradise, the place where they go and swear they've never seen a place more beautiful. To me, Hawaii sure is pretty, but it is also quite touristy, quite busy, quite expensive, etc. It's gorgeous, but it's not my absolute paradise. My haven involves mountains, aspen trees, lakes, deserted woods, and quiet, quiet, quiet. My heaven is McCall.
Every August, the last week to be exact, I find myself in this place. I look forward to it all year, knowing that will mean another summer is done with, my wonderful fall is just around the corner, and I made it another year with this nonsense (I became sick the last week of August 2006).. It's my little anniversary party to myself, and I look back at all that has happened since my last visit to this place, and look forward to what I've planned until the next time I will see it. Oh the plans I have in store for the time between McCall 2012 and McCall 2013.
I sat on the dock tonight, pitch black outside with millions of stars, toes dipped in the perfectly cool water, and didn't feel sick. Maybe I did, maybe I didn't but the important thing is that my suffering was a far second to the first thing on my mind. I was reaffirmed that there is a God and that He is the creator of this beautiful Earth. I felt of His love, His encouragement, and His joy for me. I felt assured of His plan for His children, His plan for me, His path that he is leading me down and the light that awaits me at the end.
As sad as I am to leave this place tomorrow, I'm also ready - I'm excited for the HUGE changes that are coming in the next 6 weeks and experiences that await me. They are happy ones, they are challenging ones, they are the right ones.
Yea for a happy year ahead!
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